Dent Disease | Austin Forrest




ANNUAL REPORT

THE DENT DISEASE FOUNDATION.

(A TAX EXEMPT NON-PROFIT PUBLIC CHARITY, FEDERAL NUMBER 46-2912070 UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE).


THE BOARD OF DIRECTORS

CATHERINE FORREST-PRESIDENT

JAY GUSTAFSON-VICE-PRESIDENT

DAVID ALGER-SECRETARY/TREASURER


ALWAYS KEEPING IN MIND AND DEED OUR MISSION STATEMENT.


HERE IS OUR ANNUAL REPORT.


APRIL 2014 THROUGH APRIL 2015.


SPRING 2014.


BEGAN THE PROCESS OF SENDING BUSINESS CARDS AND POSTCARDS OUT TO ADULT AND PEDIATRIC NEPHROLOGISTS IN ALL 50 STATES TO MAKE THEM AWARE OF DENT DISEASE.

TO DATE, PATIENTS, FAMILY MEMBERS AND THE BOARD OF DIRECTORS HAVE SENT OUT OVER 1000 CARDS.


SUMMER 2014.

PARTICIPATED IN THE DENT DISEASE PATIENT MEETING AND WALK. HELD IN CHICAGO JUNE 27-29, 2014 AT THE ANN AND ROBERT H. LURIE HOSPITAL.

OUR THANKS GO TO THE RARE KIDNEY STONE CONSORTIUM AND TO THE OXALOSIS HYPEROXALURIA FOUNDATION WHO HOSTED THE EVENT.


FALL 2014.

THE DENT DISEASE FOUNDATION WAS LISTED IN THE NATIONAL ORGANIZATION OF RARE DISEASES.

MANY THANKS TO SUSAN OLIVO, MARY DUNKLE AND LADA BEARA LASIC, M.D., M.S.


SPRING 2015

APPLIED FOR AND WAS GRANTED NON-PROFIT MAILING STATUS UNDER THE UNITED STATES POSTAL SERVICE.


SIGNED OUR ORGANIZATION'S NAME TO THE LETTER OF SUPPORT FOR INCENTIVE PROGRAM FOR THE DEVELOPMENT OF THERAPIES PEDIATRIC DISEASES.


BEGAN THE PROCESS OF DESIGNING A FUNDRAISER CARD TO BE SENT OUT IN MAY OF 2015.


SET IN MOTION A DENT DISEASE PATIENT AND SCIENTIFIC MEETING FOR OCTOBER 10, 2015 IN NEW YORK CITY.

THANK YOU TO DR. JOHN LIESKE AND THE RARE KIDNEY STONE CONSORTIUM AT THE MAYO CLINIC IN ROCHESTER, MN.

OUR THANKS AS WELL TO DR. LADA BEARA LASIC OF NYU LANGONE SCHOOL OF MEDICINE, NEW YORK, NY.